SCID Moms

Yesterday I went to lunch with some of the neatest ladies I know!  SCID is very rare but there happens to be quite a few affected families here in Utah.  I met most of these women (either in person or through social media) while Eli was in the hospital.  Lisy's daughter had a room right next door to us and Toni, who wasn't able to make it to lunch yesterday, was just down the hall with her son.  I can't tell you how helpful and comforting it was to have those two amazing families to lean on while Eli was in the hospital.  I'm sure I picked their brains more than they would have liked!  Sweet Sienna lost her second son, John, to SCID a year ago this month.  She is the best mom and will be so good to her future kids.  Jill and Deni are SCID veterans and trail blazed the way for the rest of us to have a much better experience.  They are magnificent.  I hadn't met Courtney until yesterday but she is amazing just like all the others.  She is one of the most faithful people I have ever met and I can tell she's a wonderful mom to her 4 kids.  If you couldn't tell, I love these ladies so much!  We have a connection that is unmatched by anything and I am so grateful for their love and support in my life. 

Jill, Me, Sienna, Courtney, Deni, Lisy

Deni, one of the most thoughtful people I've met, brought balloons so we could do a balloon release in honor of Eli and John, who've both been gone about a year.  Eli had a ton of shoes and John loved frogs so she tied these adorable shoes and frogs to the end so we could each write a little message to them.  How sweet is she??  I loved it! 

 It was so fun to see all of you!  Many thanks to Lisy for getting us together!  Let's not wait too long before we do it again!