Yesterday morning was a typical, quiet day and all seemed to be going pretty well. Eli was handling the increase in his dialysis well and we were very pleased with the progress he was making. Later in the afternoon Logan noticed that Eli wasn't moving the left side of his body. He doesn't have a lot of muscle strength but he is able to move his fingers, hands and feet and hold onto things. We watched him for several minutes and noticed that he was moving his right hand and foot quite a bit but his left side was completely limp and wouldn't respond to touch. We pointed this out to our nurse and she went to mention it to the team. A couple minutes later Eli was on his way downstairs for an emergency MRI because they were worried he had had a stroke. Everything happened very fast but the minute we had a second to sit down as we waited for the MRI to take place, it broke our hearts to think that Eli had one more thing on his plate to deal with. We knelt down and said a prayer together that Eli, Logan and I would feel peace regarding the situation and know that everything is in God's hands. It's amazing what the power of the spirit can do.
Although a complete MRI takes a decent amount of time, the doctors knew right away that Eli had suffered a stroke. Because of his low platelets, they were sure it was a stroke due to bleeding on the brain and they immediately began to order platelets in an attempt to help ease the bleeding as much as possible. However, after further examination, they found that the stroke actually happened because a blood clot had lodged itself somewhere at the base of his brain and wasn't allowing any blood or oxygen to get to the entire right side of his brain. With our very untrained eyes, it was easy for me and Logan to see how serious this blood clot and brain injury truly is with one look at the computer screen.
As soon as Eli got back from the MRI, we met with the team as they explained to us the seriousness of the situation and what our options were. Because of how low Eli's platelets already are, he isn't a candidate for things like clot-busting medications that they might typically use. Due to him being so sick already, there's really not much they can do other than make him comfortable and wait to see how he reacts and handles the blood clot on his own. They have told us that the next 72 hours will be crucial to his long-term status. There is a big chance Eli could get much sicker in the next 3 days so we will continue to watch him very closely and hope for a quiet, comfortable time for him.
One thing I have always tried to think about when times get tough is the well-known Serenity Prayer. The first part that most people talk about is great but I love the entire thing that isn't spoken about as often.
God grant me the serenity
to accept the things I cannot change;
courage to change the things I can;
and wisdom to know the difference.
Living one day at a time;
Enjoying one moment at a time;
Accepting hardships as the pathway to peace;
Taking, as He did, this sinful world
as it is, not as I would have it;
Trusting that He will make all things right
if I surrender to His Will;
That I may be reasonably happy in this life
and supremely happy with Him
Forever in the next.
At times like this when we feel so helpless because there isn't much we can do for Eli, it is such a comfort to remember that God's will will be done and we just need to have faith that it is perfect for Eli and for us. Although the odds are entirely against him, we know that if it's meant to be, miracles can happen and we are holding on to that hope. The greatest comfort Logan and I have right now is the knowledge that we are sealed to Eli and he is ours for eternity. There is no greater comfort than that.
Fight on, sweet Eli
Liz and Logan, your faith is inspiring to all who know you. Please know that we are also praying for little Eli, and for you, that you will continue to be strengthened during this extremely difficult experience. Although you don't know us, Liz, we know and love Logan and therefore love you and little Eli as well. May the Lord shower His love and His Spirit upon you as you continue to exercise your great faith in Him.
ReplyDeleteRobert and Linda Condie
I will be praying hard for you both and for Eli. (It's Steph Western, your old visiting teacher from Murray.) So much love to you all.
ReplyDeleteI can't believe how well you are responding to this. It is inspiring! And you are absolutely right, between the live angels at PCMC to God himself, Eli is in the best hands possible. Lots of prayers and love to your little family.
ReplyDeleteMy heart is aching for you and your sweet little family! Eli is a miracle and he is definitely in the Lords hands! We are always thinking of and praying for you...May you have a very quiet few days :)
ReplyDeleteI don't know you, but I have been reading your blog and am astounded at your courage and strength. I pray for you guys and Eli and will keep sending those prayers. God bless you three.
ReplyDeleteI don't know you either, but my friend posted your blog address on FB and I read through it today. It's amazing how inspired I feel through so many tears. I am in awe with Eli and with both of you. You will be in my thoughts and prayers. I am a photographer and would love to give you a Free photoshoot when the time is right because today, you gave me courage to push through. My preception and attitude has been lifted because of your words and I know that I can make it. My photography blog is photosbystephanieut.blogspot.com and my cell number is 801-598-5044. Please let me capture some memories for you - even if it's years from now. Thank you and God Bless! -Stephanie
ReplyDeleteI knew your brother from High School and have been silently following little Eli's Journey! Know that you are in our thoughts and prayers! Like Lacy said above, he is in the best hands possible! Many thoughts, hugs, love, and prayers!
ReplyDeleteLiz, Logan, and Eli-
ReplyDeleteSo much love, so much faith, so much strength. I can't believe how well you have been able to articulate your experience with us. Those who love you, some know you, some don't, and others still pray for all of you because they can. You are an amazing family and I can feel it in your words, that you have hope, and you accept that God's will is the ultimate. You amaze me each time I read your blog and your faith in the Lord tickles me knowing that you know and get it. Such a great gift we have all been given in being able to share this journey with you all.
Love you lots, Lynn
You are in our prayers and thoughts in California. We know you through Julie and Brent, and we were also in Logan's ward when he first came home from his mission. Your faith is an inspiration to us. What an amazing little boy.
ReplyDeleteYour examples of faith, strength and devotion are inspiring. Prayers and best wishes to your family.
ReplyDeleteI haven't been able to stop thinking of you, and Logan, and Eli today. I read your entire blog - start to finish this morning, and I can only imagine the heartbreak you're experiencing. This isn't how it's supposed to go. Thank you for your positive example to me. I'm certain you have other things on your mind right now, but I came across another blog post today that touched me to the core, and I think it's perfectly perfectly appropriate for you today. If you're at all interested, here is the link:
ReplyDeletehttp://poppyfieldletters.blogspot.com/2013_05_01_archive.html
It's called Seeds, and was written on May 22. (Sorry I'm not techy enough to figure out how to copy that very post).
I am praying for you all.
I just came across your story on facebook and my prayers are with you and your little man. I have a son named Eli. He is 10 months old and your story just touched me deeply. I am so happy that you have found peace in God. Am thankful for your example and how well you are handling this situation. As a mom, I feel for you and wish little Eli all the best. He is an adorable boy and we will remember him in our prayers. May God continue to bless you and watch out for Eli and your family.
ReplyDeleteLove and prayers from our family to your sweet family!
ReplyDeleteYou both are so strong and so lucky to have eachother. I cant get over how adorable your little Eli is. I hope to see many more pictures of your inspiring boy! My Thoughts and prayers are with you!
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