Monday, March 25, 2013

~A Second Chance at Life~

It's official!!  Our little fighter is now on the road to recovery after receiving a bone marrow transplant today!!  We have had a great day filled with fun and excitement as we watched our beautiful baby boy receive a second chance at life.  I woke up feeling like it was Christmas I was so excited :) Everything went according to plan and basically as well as possible.

Our day started with a hospital photographer coming in and taking pictures of Eli.  She was going around the hospital taking pictures of some of the patients and asked if she could take a few of Eli.  We were happy to have him participate!  He was sound asleep but I think they turned out pretty cute.  Around 12:30 Eli's party started!  A bunch of the staff came in to sing, give Eli some gifts and wish him well!


The two toys are from me and Logan (he won't be able to use them for a few months) and the darling blanket, stuffed elephant, teething toys and BMT t-shirt are from the staff :)

Anyone that wants to participate guesses what day they think Eli is going to engraft (when his counts get to a certain point and they know the marrow is making itself at home) and puts their name on that day and a dollar in the envelope.  The winner gets the glory and Eli gets the money :)
 Right after our little party, they quickly got the transfusion started!  Most people think (and we did too before we got involved in the whole process) that a bone marrow transplant is something that happens in surgery but it's actually quite the opposite and very "anticlimatic".  It happens in the room, right at his bedside and it is just put right into his central line.  Eli slept through almost the entire thing which only lasted about 45 minutes.  His blood pressure spiked pretty quick so they gave him some fast acting blood pressure medicine and that did the trick!




He woke up towards the end and was a pretty good boy while everything finished up: 



I waited all day for Eli to wake up enough so I could take some pictures of him but he is getting so many meds that make him sleepy so he has basically been zonked out all day.  I attempted a few and this is what we got:




The real waiting game begins now!  We no longer have to wait to find Eli's typing or find him a match or wait for the transplant to happen.  All we have to do now is wait for the new marrow to find its way into his body and make itself at home.  We will be able to go home when his ANC (absolute neutrophil count) gets to 500 and stays there for at least two days in a row.  500 is still WAY below a healthy persons number but that's when they start preparing us for discharge.  The average day of engraftment is 25-28 days so it will likely be at least a few weeks.  Our main goal continues to be to keep him healthy since his counts are lower than ever because of the chemo and hopefully keep him as comfortable as possible.

Logan and I can't say enough how proud we are of our little Eli and how grateful we are to each and every one of you.  We couldn't be where we are today without all of the incredible support we have received each and every day!

Fight on, Eli!

13 comments:

  1. I am as proud and thankful as a grandma can be! Eli, Liz and Logan began the first day of a new life together surrounded by an amazing medical team and the ever present love and prayers of their many dear friends and family members!

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  2. What a darling post! My Mom and I read it "together" (both of us looking at it on our separate computers in Provo and Murray and talking on the phone at the same time) and were so touched by all of the special effort that went into making this important day so memorable! I am so proud of all of you, and especially of sweet Eli! Keep up the great work. Love you! Fight on, Eli! :)

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  3. I know we don't know each other well but Ive been following your sweet families blog and wanted to tell you what a wonderful example of courage and faith you are. As a new mom myself I cant even begin to imagine all you and your brave little guy have been through but your positive attitude and optimism is so inspiring! Babies really are all such miracles and your little Eli especially. I hope all continues to go well and that this new start allows you all to have the wonderful life you deserve!

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  4. so glad bone marrow transplants are possible! love this. GO ELI!

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  5. You guyes are so strong and I've been reading and paying attention to your blog since day one and I want to first off thank you for inviting people like myself to participate in this journey with you, I couldn't imagine the emotions you have in a day but its humbling for myself as an outsider looking in as to what you all.are going through and the strength you and your amazing little man display everyday. My wife has a nephew born with a similar condition who had all these same things so she as much as anyone can feel for your family. Best of wishes, as always your family will be in our prayers and I look forward to the updates and the continued success and recovery of your baby boy!

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  6. This was such an exciting post to read! Literally had a smile on my face (plus a few tears of joy) the whole time I read this :) and those cute pictures just made me smile bigger!! LOVE thinking of you guys celebrating! You and Eli will always be such an inspiration to me!
    ~ Tori (Christensen) Goodrich

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  7. Lynn and Harry UngerMarch 26, 2013 at 6:55 AM

    Liz, Logan, and Eli- You are all so Blessed to have each other. You have really written Eli's story so well and he is a great little fighter. We continue to send prayers from Minnesota as Eli moves towards his victory. Much Love to you all and thank you so much for sharing your story. Lynn & Harry Unger

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  8. Liz and Logan. What an exciting day! Congratulations little Eli! Can't wait to watch the healing happen. You are a beautiful family.

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  9. Liz and Logan, thank you for sharing this remarkable, inspiring, and sweet story with the rest of us. I especially love the pictures you post of him; is it any wonder he is SO, SO adorable, with parents like you? He looks healthy, well-loved, and determined to beat this. prayers and love...

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  10. So happy for you!! Such a beautiful amazing family!!

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  11. Eli, Liz and Logan, you are all in our prayers and we will keep you there all along this journey. We are so pleased that the transplant went well. Thank you for sharing the precious photos of this tough little guy and for sharing your story. I put his name on the prayer roll at the Salt Lake Temple this afternoon.
    Hang in there and Eli, fight on!

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  12. positive thoughts and wishes to your sweet little family!
    my niece had a successful bone marrow transplant a few years ago and I know just a tiny bit of what an exciting but nerve racking journey it is. if you are interested in reading her story, it's here: http://imacraftartist.blogspot.com/2008/04/day-1.html
    i hope your little dude continues to be a champ and fight fight fight!

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  13. Liz -

    I just wanted you to know you are in my thoughts today. I hope that everything is going well. Please let me know if there is ever anything we can do for you.

    - Deni - Mom to Ryan XSCID
    deniberger(at)gmail(dot)com

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