Looking back on the first four days, I think Logan and I better appreciate how well Eli handled everything because the last 3 have been much tougher. The doctors said the chemo used during the first 4 days is typically the hardest on patients so I think we were hoping since he made it through those days so well the last 4 would be pretty similar. That hasn't been the case for Eli but we totally understand that every patient is different. Luckily he will be done in just over 24 hours from now!
We are able to control his pain pretty well with some strong pain meds that also help him sleep but the toughest thing on him is his diaper rash. They have given us all sorts of sprays and creams to use on it but as his immune system gets worse, there's not much we will be able to do for it until his counts go up and his body can heal it on its own. We try to change his diaper as often as necessary but as little as possible (I hope that makes sense!) in order to keep it clean but also to prevent irritating it too much by cleaning it so often. One thing I will definitely cherish more in the future is a rash free little bum!
We are so excited to reach this time tomorrow! Eli will get one more dose of chemo tonight at midnight, then tomorrow at 6:00am, noon, 6:00pm and midnight and then he will be chemo free and hopefully completely immune system free as well! Apparently some of the side effects of the chemo can start to take effect a few days after he finishes so fingers crossed he experiences very few of them.
The audiologist was hoping to repeat the hearing test today to verify the results she got the first time but he's supposed to be sleeping so she can get an accurate test and he wanted nothing to do with sleep when she came in!
I always feel so horrible that we can't give Eli baths right now because of his central line but we gave him a sponge bath today and he loved it just as much!
7 days down, 1 day to go!
**In case you didn't see my Facebook post...Last night, Logan and I were anonymously given an incredibly generous gift basket. We were so thrilled and can't express our thanks enough to whoever gave us the amazing gift. I hope whoever it's from knows how much that meant to me and Logan. We pray you will know what a blessing those things will be to us! Thank you, thank you!**
Eli is so precious! We are praying for you and hope the transplant day is a great one! A new start to a brand new life :) How exciting it is! Eli is so tough and so are his parents!!!
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