Here at the hospital, the day of Eli's bone marrow transplant is considered Day 0. Every day before is a negative day and every day after is a positive day. If all goes well, the doctors hope to lift some (but definitely not all) restrictions by day 100. Because Eli started his chemo today, it is day -9.
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Two days ago Eli went under sedation again to have his central line replaced. After the first one was put in, it was infected within 24 hours and removed after 48. Our main goal the past couple days has been to keep his new line extremely clean and to do everything we can to keep it from getting infected. Everyone has been watching it very carefully and it has looked really good. The plan was to pre-medicate Eli pretty early this morning and then begin his first 8 hour dose of chemo by 8:00am. I finished feeding him and went to change his diaper and when I checked his line it was bright red and puffy! :S His nurse and doctor came and looked at it and couldn't believe he was already reacting to it again. Because his first line got infected so fast, they kept him on a very strong antibiotic to help prevent his new one from getting infected so Eli's medical team is thinking it's maybe not infected but possibly just irritated. Keeping the central line in is very important so they decided to put some steroid cream on his chest and watch it very closely. A few hours after we put the cream on, the redness was almost gone so that is a huge blessing!
Because of the scare with the line, we got started a bit late with the chemo but everything since then has gone very smooth. A new IV pole was brought in to accommodate all of the medications Eli is receiving around the clock. Typically he only has 1 IV pump and now he needs 3.
| Not happy about me taking pictures with the flash |
| Such a happy little fighter! |
I wish I could reach out and hug you both! Thank you, Liz, for personifying courage and compassion.
ReplyDeleteI am with you in spirit every minute!
xoxoMom
I too wish that I could hug you all! I am so proud to call you my daughter and to know that you are caring for our most precious Eli. I so miss you all but am so buoyed up by your strength. We hope that you feel of our love even thru this distance. Love to you all and fight on Eli!!! Love, your grandma
ReplyDeleteWords cannot express how much I love you Liz. You are the definition of strength and I continue to be in awe of you. I cry for Eli and the fact that he has to go through this, but he is so lucky that you and Logan are sacrificing so much of your life to be by his side 24/7. I am honored to know you and I just wanted to say again that I am here if you ever need anything! If you ever need to talk, no matter what time of day or night it is I am here. Your family continues to be in my prayers.
ReplyDeleteLiz you are a rock!! I can't even imagine what you're going through. It's clear you love that little boy with all your heart and that's what matters most to him right now. Your strength is absolutely inspiring, so thank you for sharing your story. You are all in our thoughts and prayers.
ReplyDeleteMandy and Jason Swann
What a great first day! I remember our daughter bouncing all over the bed the first few days...the doctors were baffled. Really there was just one really sick day and the rest were ok once they got the pain controlled. (this isn't to scare you! medicine is your best friend!) I bet Eli will just want to be held. And what kind of burden is that? ;) He is so sweet. We are praying for you!!
ReplyDeleteWell that little nephew sure is the sweetest little thing!I am so happy that his line is okay. I am stressing over those bibs....they will be done soon! I gotta go Ben needs me to go be a cy bug now (have you seen wreck it ralph)
ReplyDelete